Our own Angel

Our daughter's greatest achievement is being able to walk when she was 3 years old, albeit a bit late. But for an A.S. kid, that is a milestone, 90 percentof them don't walk at all. Our Daughter Jiann shows improvement day by day, , albeit rather slowly but still making progress. It's very hard sometimes to go out of the house , because she follows you to the door and wants to come with you. But, we cannot bring her along every time. We go out sometimes with the whole family, but if we need to make a living, she has to stay home. She is showing emotions, and brings you to the remote if she wants the channel changed or watch a movie.

We have learned so much respect for Jiann and how she has handled enormous setbacks with perseverence and smiles. It is unclear how many of Jiann's challenges are caused by AS and how many are random bad luck.

What is Angelman Sydrome?
Angelman syndrome (AS) is a neuro-genetic disorder characterized by intellectual and developmental delay, sleep disturbance, seizures, jerky movements (especially hand-flapping), frequent laughter or smiling, and usually a happy demeanor.

A constant question that We still get asked is how do Jiann and her sisters Jaymee and Jewel get along?  How do they all get along?  Time and age has not faltered, but even strengthened the amazing bond that Jiann and her sisters have.  As I answer this question I still tear up.  Jiann is so blessed to have the best sisters is all a little girl could hope for!  Jaymee and Jewel are amazing with Jiann and shows her nothing but tolerance, patience, admiration, protection, and most of all love for her.  Jiann is now 9 yrs old and she still gives her sisters hugs and kisses.  Jaymee and Jewel are constantly stating how great Jiann is and how amazing she is doing.  Jaymee is at a delicate age where image is so very important to teens and she is such a stand up young girl when it comes to showing affection and admiration for her younger sister, same goes with Jewel. We are ver blessed to have such great daughters that love each other and take care of each other.

Greatness really started @Home for my Family.